Chapter 35: Oh the Places We Will Go: Cath Lab Edition #4

Alex did very well today, he took some time to warm up but then was very cooperative for most of the day. The ear tubes went in without a problem and done in about 10 minutes. The cath went smoothly as well. Dr. Rome was able to break open the stents that were already there as there was some growth of the artery. His goal is to eventually put in a stent that will grow with him, but he wants the artery to be a little bigger. We will follow up with cardiology in a few weeks and come up with a plan.

Alex enjoyed all of the food today, especially the ice cream! He went on many walks and was able to explore the playroom today! It has been a very long day so hopefully we all get some rest tonight.

Enjoy some pictures from the day!

Love,
Bobby, Erica, Ben and Alex

Chapter 34: Back to the Cath Lab

Since our last update we have been busy with the end of school and the start of summer. As planned, Alex's cath is coming up on Monday July 8th. He will also have a new set of ear tubes placed first. We haven't had a cardiology visit since the last update so we aren't totally sure what the plan will be for the cath until Monday morning. He hasn't had a cath for a whole year so we are a bit nervous, but hoping for some growth of the left pulmonary artery!

We have been enjoying the summer so far with a few day trips to Philly. We were also able to enjoy a week at the beach with Bobby's family in Wildwood, NJ. The boys had a great time and are looking forward to another week at the beach in a few weeks with Erica's family!

Like clockwork, Alex was sick last week on our vacation with a fever and cough. He's doing much better now, but keeping him in a bubble until Monday! We will be sure to update once the procedures are over. We appreciate all of the thoughts and prayers.

Enjoy the pictures below!

Love,

Bobby, Erica, Ben and Alex

Heart Walk

Team Alexander

Franklin Institute

Best buds