Happy Fall to Everyone!
Alex has been doing well since his last cath and ear tube placement. We have had a few appointments in the last month and wanted to give some updates.
Last month Alex had his annual cardiac kids developmental follow up. He spends about an hour with a neuropsychologist who tests all areas of development. He scored in the Average to High Average range, doing really well in the language area. We don't have to go back for 2 years!
This week Alex followed up with his cardiologist and had an echocardiogram. Thank goodness for Daniel Tiger, Alex laid on me and watched Daniel Tiger for the whole hour that they did the echo. He fussed a little in the beginning but then was awesome. He continues to not be a fan of getting his vitals done when Mommy is around but eventually we completed everything. We even tried doing everything on Will (his doll) first, but that didn't work. The echo showed things were stable, they were able to see flow through the left pulmonary artery and some of the stent fragments (that were broken open in the cath). Alex's cardiologist is confident we can wait 6 months before following up with another echo because of how things have been progressing. It will be a little strange not following up in 3 months like we usually do but we are very excited not to have to travel to CHOP as often.
We have been having lots of fall fun the last couple of weeks. Hoping for an uneventful fall and winter. And hopefully we don't have another update until the spring!
Love,
Bobby, Erica, Ben and Alex
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| Eating lunch in the cafeteria |
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| Enjoying a little treat before the appointment |
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| Boo at the Zoo |
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| Pumpkin Picking |
